my son has 2 1/2 month old and he is suffering from pontocerebellar hypoplasia type 6 doctor take test at 6-04-2021 and the result was came yesterday the doctor was said that it is rare disease and it has no treatment for this but he take EEG and give anti epilepsy medicine such as levipil gardenal frizium eptoin and topomac this medicine are gives continuosly at mrng and night but seizures are comes continuosly what can I do to decrease sezures

1 Answer

ExpertDr.Rasika ThosarPaediatric Intensivist4 years ago

A. follow doctor advice get your baby evaluated by the doctor in person. Its important in this case. avoid home remedies in this case make sure baby is comfortable and well cared.

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