my son has 89 days old he had seizures continuosly I consult doctor take whole exome sequencing test @one month before previous week he said that my son was suffering from pontocerebellar hypoplasia type 6 it was a rare disease and it has no treatment for that and the doctor advised that take levipil gardenal benadon topomac medicine continue to decrease seizures But I give these medicines to my son the seizures comes continuosly Now what can I do pls give some instructions or tip