Hello! My baby is 67 days old. She is an IUGR and a late preterm baby. She weighed 2.3 kg when she was born and when we went for the last check up she was 3.2 kg. She won't breastfeed nor latch the bottle properly. She has feeding problems and also a very small perimembranous in her heart. She has got alot of wrinkles on her body except for her face. I had low amniotic fluid since 6th month and a doctor says that she is extremely dehydrated because of which the wrinkles. Another doctor says that she might have Cutis Laxa. What are the chances that my baby has that condition? I read that it is a very rare genetic disorder and see that babies with Cutis Laxa have Hyperextensible joints and bones but my baby doesn't have that problem. Am worried since the doctor said that. My baby's wrinkles are still the same. There is some improvement but very less. How long will it take for her to become normal? If she is extremely dehydrated is there anything that I can give her to make her skin normal.

Question

Hello! My baby is 67 days old. She is an IUGR and a late preterm baby. She weighed 2.3 kg when she was born and when we went for the last check up she was 3.2 kg. She won't breastfeed nor latch the bottle properly. She has feeding problems and also a very small perimembranous in her heart. She has got alot of wrinkles on her body except for her face.  I had low amniotic fluid since 6th month and a doctor says that she is extremely dehydrated because of which the wrinkles. Another doctor says that she might have Cutis Laxa. What are the chances that my baby has that condition?  I read that it is a very rare genetic disorder and see that babies with Cutis Laxa have Hyperextensible joints and bones but my baby doesn't have that problem. Am worried since the doctor said that. My baby's wrinkles are still the same. There is some improvement but very less. How long will it take for her to become normal? If she is extremely dehydrated is there anything that I can give her to make her skin normal.

Accepted Answer

To know whether baby is having Cutis laxa... u need to go for Genome sequencing. Else Dr can only do guess work. better go for Genome sequencing so that u can clear any confusion.

Accepted Answer

To add up to my question above.. my baby was asked to give a top feed after breastfeeding. Since she has latching issues she couldn't breastfeed continuously for  atleast 15 minutes so far. If she latches, she sleeps in 2 minutes. I have to pump and give her my milk in a bottle. I refrigerate the extra milk and later thaw and feed my baby. I hardly feed formula because it takes a lot of time for me to feed 40 ml of breastmilk and then she sleeps. What can I do to increase her fat? I was told that I have to feed her continuously but that never happens. She is always tired and also has a nasal congestion. She never sleeps continuously for 3 hours. Sometimes she sleeps for 5 hours at a stretch. Her sleeping pattern is messed up.

A. To know whether baby is having Cutis laxa... u need to go for Genome sequencing. Else Dr can only do guess work. better go for Genome sequencing so that u can clear any confusion.

Q. #asktheexperts My baby was preterm and at birth she weighed 2 kg. Now she is 3 years abd 5 months old and weighs 13 Kg is that normal

Q. My baby was delivered at 34 weeks and weighed 2.190 kg. Now he's 84 days old and weighed 5 kg. Is this a normal weight gain for preterm babies?

Q. #asktheexpert my baby is an iugr baby born at 37 weeks with weight 1.650kg now my baby is 11 months old weighed 6.6 kg . My baby is looking so small and tiny is there any problem

Q. My 3 year old is 10kg and not gaining weight. She was born with iugr with weight of 2 kg

Q. When my child was born he weighed 2.680kg. Now its 3 months after birth and weighed 6.70.Doctor said normal weight will be only 4.0kg. Is 6.70 kg is normal?

Q. My baby height is 78cm and weight 9.9 kg Baby is 2 years 3 months old It’s a preterm iugr baby What supplement I will give him to increase height

Q. my baby is 3 month 26 days old she is weighing 5.5 kg when she was born she weighed 3.25 kg is this a normal weight for a baby

Q. Doctor my daughter is not gaining weight she is only 7.134 kg when she was born she weighed 3 kg please tell me what and how much can I feed her

Q. hello sir. I wanted to know whats the normal weight gain per week or in a month for babies. my baby is preterm weighed 1.8 kg at birth. now she is 4.7kg and she is 3 and half month old

Q. #asktheexpert .My 5year old daughter is 12 kg. She is not increasing weight and height. She was born with birth weight 2kg. She was also an iugr baby.